Sickle Cell Support Organisation | Not Just You | Represents Sickle Cell Jan 26 – Jacana Books
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Sickle Cell Support Organisation | Not Just You | Represents Sickle Cell Jan 26

Ruva N Friends hope that they can raise awareness for sickle cell disease through the power of music. They have put together a worship event in which they 'aim to bridge people from all walks of life together to fellowship and connect with God through praise and worship'.

Sickle Cell disease is a group of disorders that affects haemoglobin, the molecule in red blood cells that deliver oxygen to cells throughout the body. People with this disorder have atypical haemoglobin S, which can distort red blood cells into a sickle, or crescent shape. There is no cure for most people with sickle cell disease. A number of health problems arise throughout the lifetime of the sufferer: anaemia, swelling in the hands and feet, bacterial infections and pain. The average life expectancy in the developed world is 40-60 years. 80% of people affected by sickle cell disease are believed to occur in Sub-Saharan Africa. 

Not Just You is a non-profit Sickle Cell Support Organization that is devoted to creating a support system for individuals and families affected by sickle cell disease. Their mission is to shed celebratory light on one’s sickle cell journey and provide a sense of hope for these individuals. They believe that in strengthening the sickle cell community, they are leaping towards eradication of the worldwide shame and stigma associated with the disease.

According to their press release, Ruva is a gospel recording artist, who debuted her first EP titled No Boundaries. The date for your calendar is 26th January 2019.

Please have a look at their website for more details.

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